2021. You helped.

2021. You helped.

Podari.Life has four ongoing programs:

First program provides doctors, hospitals and researchers with a current access to Western academic and clinical research - via relevant journals and database subscriptions paid by Podari.Life. The program also provides scientists in the field of cancer research with grants to participate in international conferences and exchanges. In 2021 Podari.Life had spent $5,248 on this program as all conferences were cancelled.

Second program covers rare and unregistered medications needed to cure children in Russian hospitals, primarily Dmitry Rogachev National Research Center of Pediatric Hematology, Oncology and Immunology. The total expense for this Podari.Life program was $157,660.

Third program covers treatment and rehabilitation.  This program cost in 2021 was $301,326. $300,000 are going to be used for Izmalkovo Project, and we support this project with donations in cryptocurrencies.

Fourth program covers the expenses for IT that help to promote cancer awareness and reach more donors and stay in touch with patients parents and families.  In 2021 we spent $13,169 on this program.                                                        

In 2022 we hope that with your help we continue to support all these programs,  and we are looking for new fundraising opportunities: not only NFT-auctions, but also in-person events, that all of us miss so much.

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MIGB-therapy for Dmitry and Yaroslava $28,250 USD

MIGB-therapy for Dmitry and Yaroslava $28,250 USD

Dmitry (4 yo) and Yaroslava (5 yo) both were diagnosed with neuroblastoma, both need MIGB-therapy.

This March 2021 ultrasound showed that Dmitry has neuroblastoma in his stomach. He was accepted at Dmitry Rogachev Medical center and started to get his treatment. In August doctors prescribed Dmitry MIGB-therapy.

Yaroslava has been fighting neuroblastoma since 2018, when she was accepted in ER with acute stomach pain, that appeared to be cancer. Yaroslava received chemotherapy and radiation therapy, and the next step was MIGB.

Radioactive Iodine is an important part of this type of treatment. In most cases, neuroblastoma cells are capable of accumulating this radioisotope. And it turns out that these cells are, as it were, irradiated "from the inside", while the rest of the body suffers relatively little. After a few days, most of the radioactive isotope decays or is excreted from the body, and you can proceed to other stages of treatment. And our donors helped to get Iodine for both treatments.

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Three boys, three different illnesses - same medication. $19,654 USD

Three boys, three different illnesses - same medication. $19,654 USD

You helped to buy Foscavir for Kirill, Arseny and Mukhammadkarim.

 

Kirill is 15 yo. He was diagnosed with AML last year and was accepted for treatment into Dmitry Rogachev Medical Center in February 2021. In June doctors decided that Kirill needed bone-marrow transplantation, and luckily unrelated donor was found fast enough. To avoid deadly risks of cytomegalovirus Kirill needed Foscavir. And you bought it. It is one of many medications that Kirill has to take to fight his disease, but it is an important tool in this battle.

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Arseny has another illness - aplastic anemia. After a year of treatment Arseny also went through bone-marrow transplantation from unrelated donor, and as Kirill, he needed Foscavir because of CMV threats. Unfortunately graft rejection occurred, but doctors remain optimistic and keep helping Arseny to get better and full recovery.

Mukhammadkarim was diagnosed with beta-Thalassemia in 2018. Since then it is a very long path to recovery, in 2019 doctors decided that bona-marrow transplantation was the best cure, but Mukhammadkarim doesn’t have any siblings, so it took time to find an unrelated donor and the boy ready for the procedure. Pandemic situation didn’t speed things up either. In July 2021 Mukhammadkarim had the transplantation and two months later doctors prescribed him Foscavir.

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Cidofovir fo Madina - $1,516 USD

Madina was only one year and a half when she started to feel sick. It took two months to figure the right diagnosis, and it was Acute Myeloid Leukemia (AML).

Because Madina needed to have bone-marrow transplant, in September 2020 she and her family traveled from Yyakutsk to Moscow, to Dmitry Rogachev Medical Center. She spent there several months, and by the end of the year they returned to their hometown hoping that Madina won this battle. Unfortunately this battle wasn’t over. Three months later Madina was back to Moscow, going through different treatments at Dmitry Rogachev Medical Center, and waiting for another bone-marrow transplantation. And you know already that most of the patients need Cidofovir after this procedure. So you helped Madina to get it on time.

Now Madina is back to Yakutsk under the supervision of local doctors. We all wish her quick and full recovery.

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NFT sale saves lives

NFT sale saves lives

Foscavir for Roma and Maxim - $6,820.

Thanks to NFT sale and those who made it possible.

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Roma is three and a half years old and from Vologda. Maxim is five years old, from a small town in Bashkortostan. But for doctors at the Dima Rogachev Children's Hematology Center, their stories are very similar. Both children have a very severe genetic disease, which affects only boys and dramatically impairs the function of the hematopoietic and immune systems. Wiskott-Aldrich syndrome entails dramatic deterioration of blood clotting, reduce resistance to infections, and produce a high risk of malignant tumors. Normal full life with this disease is only possible after a bone marrow transplant from a healthy donor: in this case, transplantation replaces the hematopoietic and immune systems with a donor's cells. But transplantation is a difficult and aggressive treatment. And during the period when the child is recovering from the introduction of donor cells, severe infectious and immune problems are possible, associated already with the consequences of the transplant itself. Sometimes these problems are of a very persistent nature, lasting many months or even years

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Maxim underwent a second transplant in 2021 because of partial rejection of donor bone marrow. Roma underwent a transplant a year and a half ago, but not all of the problems are solved yet. Both boys have viral infections, which would be harmless for healthy people, but are very dangerous during the period of low immunity after transplantation. Roma got pneumonia caused by one of the herpesviruses, and Maxim's tests constantly show cytomegalovirus. And as usual medications did not help either of them, we had to buy a foreign medication "Foscavir".

Now both children continue treatment, and we, of course, are waiting for improvement. 

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Tepadina for Nuraj - $13,977 USD

Tepadina for Nuraj - $13,977 USD

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As you might know, Podari Zhizn and Podari.Life as well try to help kids with other hematological diseases, not only those related to cancer.

Thanks to you Agaeva Nuraj received her medication while she gets here treatment from Thalassemia, a blood disorder characterized by decreased hemoglobin production.

Nuraj turned 4 y.o. last month, but she had gone already through different therapies, and doctors suggest that in order to feel better she needs hematopoietic stem cell transplantation. To get ready for this procedure Nuraj needed Tepanida, and thanks to you, she is already receiving it.

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Melphalan (Alkeran) for Alisa and Diana - $6,129 USD

Melphalan (Alkeran) for Alisa and Diana - $6,129 USD

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Diana was diagnosed with ALL in 2019, when she had been living with her parents in Laos. She got her first treatment in Thailand, and by the end of 2020 her family returned to Russia with a hope that their child would continue to get help. 

Diana’s parents worried that the illness came back, and they weren’t wrong. In April 2021 doctors at Morozov Children's Hospital started new treatment, Diana went through different types of therapy, and in order to get a bone-marrow transplant she needed Alkeran. 

Alkeran is a chemotherapy medication used to treat different types of cancer, especially when a patient is scheduled for bone-marrow transplantation. It is also the case for Alisa. Alisa is 4.5 years old, and in May 2020 she was diagnosed with neuroblastoma. Her path to cure is tough: a lot of medications, a surgery, and now after a course of Alkeran Alisa is expecting to get her transplant. 

Thank you for helping Diana and Alisa!

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Cresemba for Arseny Rudenko - $13,407 USD

Cresemba for Arseny Rudenko - $13,407 USD

Senya Rudenko is 10 years old and he has been fighting cancer for 8 years.

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He received his first treatment at the age of two. He spent several months in a hospital but ALL came back when Senya was 6, and the fight started over. After chemo and a lot of antiviral drugs Senya went home in October 2016.

But in August 2020 Senya returned to a Moscow hospital after his cancer relapsed once again. Standard chemo procedures became too dangerous, so doctors prescribed another drug, Blincyto, and Podari Zhizn supporters paid for this medication (almost $30,000 USD). And during Blincyto treatment Senya also has to fight fungus infection that attacks his lungs. So doctors believe that Cresemba would help. Thanks to you, we bought this medication.

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Foscavir for Gor and Salima - $13,182 USD

Foscavir for Gor and Salima - $13,182 USD

Salima is only 7 years old, but she fights cancer for a second time: her treatment proceeded during summer of 2020, and ALL relapsed in December. Podari Zhizn raised money to pay for her chemo treatment, and later Salima received bone-marrow transplant. To complete the treatment and defy complications, Salima needs a course of Foscavir – essential anti-bacterial and anti-viral medication.

Here is a video about Salima (in Russian)


Gor has a rare genetic disease - Fanconi anemia.

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One of the major hematological complications associated with this disease is bone marrow failure. Gor has been on a search list for a bone-marrow match for 5 years, but still there is no 100% match.

Meanwhile Gor started to feel worse, so in August 2020 doctors at Dima Rogachev medical center suggested to perform hematopoietic stem-cell transplantation (HSTP). Since then Gor is much better, but as many patients who went trough this procedure he needs Foscavir, that with your support we were able to buy.

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With your helped we also paid for Cidofovir ($7,045 USD) for Arutyun Ayvasyan, but we are really sorry to tell you, that Arutyun has just passed away.

i-MIBG for Vlada Kleshcheva - $15,066 USD

i-MIBG for Vlada Kleshcheva - $15,066 USD

Vlada Kleshcheva is 10 years old, and last year she was diagnosed with neuroblastoma.

Vlada is an only child in the family. She loves the nature and dreams to become a farmer. She has always had many hobbies: sports, drawing, hiking. But for eight months now, she has been living in the hospital, where she has to undergo very heavy treatment.

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Vlada has a tumor which usually occurs in very young children - but in rare cases it may happen to schoolchildren as well. Neuroblastoma is not only an aggressive but also an insidious disease: the first symptoms usually begin to appear only when the tumor has already reached significant size and has metastasized. This is how it turned out with Vlada: when in June 2020 the tumor was diagnosed, the foci of neuroblastoma were already spread throughout her body...

Vlada received her first chemotherapy at Morozov Hospital. Gradually she felt much better but further tests revealed that there are still active tumor foci, which can grow again any time.

Cases like Vlada's require an unusual therapy which was implemented in Russia for the first time a few years ago. The child is injected with a special drug, accumulated by the neuroblastoma cells. This drug contains radioactive iodine. As a result, tumor cells aggregate the radioactive substance and are killed from the inside. Doctors believe this procedure markedly increases the chances of successful treatment for Vlada's diagnosis. The only problem is that the needed radioactive drug is not registered in Russia and can only be obtained abroad. Thank you very much for your help, which made it possible to buy this medicine for Vlada!

The radioactive iodine therapy is now behind. Vlada took it without any complications, and she is facing the next stage of treatment - high dose chemotherapy with the help of stem cells. We are very hopeful that this stage will finally resolve the remaining active tumor foci.

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Cidofovir for Andrey Barykin and  Ivan Tsuprov  - $7,362 USD

Cidofovir for Andrey Barykin and Ivan Tsuprov - $7,362 USD

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Andrey has been fighting cancer for two years. He has been diagnosed with ALL in July 2019 two months before his seventh birthday.

He started to receive treatment in Ufa, and later transferred to Dima Rogachev center. In November 2019 doctors decided to start hematopoietic stem-cell transplantation (HSTP). Unfortunately, transplant cells were rejected by the immune system. Andrey got his second with HSTP in March 2020, and since then his weak immune system needs support to fight different infections.

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Ivan is 15 y.o. He was diagnosed with ALL in 2017. He has also gone through different treatments, and in 2020 doctors decided that the next step on his path to remission is HSTP. His aunt matched as a donor, and a supporter of Podari Zhizn covered all costs related to her hospitalization prior the the procedure. After the transplantation there is always some risk of viral infections attacking a weak immune system, so that’s why Ivan might need also to get Cidofovir.

Ivan went into remission and now he is back to his hometown in Kemerovo district.

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Cidofovir is an anti-viral drug that help weak immunity to fight infections that are very dangerous for those who go through Bone Marrow or Hematopoietic transplantation.

UDT (from 04/30/2021) Unfortunately, Andrei lost the battle, may he rest in peace.